South East Cambridgeshire MP Sir Jim Paice is backing calls for improved services for people with rare and complex conditions.
Sir Jim met with Robin Lachmann, a local clinician, to talk about specialised services.
The meeting was arranged as part of a lobby by the Specialised Healthcare Alliance (SHCA), which aimed to provide fresh insight into the current state of specialised healthcare.
Under changes to the NHS in 2013, there has been a transformation in the way that services for rare and complex conditions are managed. These changes were broadly welcomed by the SHCA, but whilst there have been some improvements, they say significant challenges remain.
Sir Jim said: “I am delighted to have spent some time with Robin from the National Hospital for Neurology and Neurosurgery.
“He has helped me to gain a better understanding of the nature of specialised services for rare metabolic disorders.
“We need to ensure that the right care and support is offered to all people with rare and complex conditions”.
Baroness Wheeler, chair of the SHCA said: “It is easy to forget that changes in the Health and Social Care Act have such a direct impact on local people, particularly in complex areas such as specialised services.
“We need NHS England to identify a sustainable approach to specialised commissioning, with a focus on high quality services for all who need them.”
The SHCA is an alliance of over 100 patient-related groups, supported by 14 corporate members which campaigns on behalf of people with rare and complex conditions.
For more information, visit www.shca.info.